Here's a complaint post for ya, just in case you thought too highly of me. Really tried to just post the schedule, but of course my commentary plays into it. This sucks for a child that sleeps 11-12 hours each night, without waking, and needs her sleep now more than ever to keep her body in tip-top fighting condition. Ruby barely made it through an early lunch today and was yawning significantly at 10AM. Oye...
8PM - oral meds, vitals, bedtime
10PM - *eye drops, bright lights and loud voices trying to coax Ruby to 'open your eyes' helped make sure she was very awake
1230AM - vitals
2AM - ???? something involving lots of noise and commotion in the room
3AM - chemo start, including the opening of packaged paper gowns, putting on said gowns, and disposing when finished. Oh, and the monitor beeped incessantly through the whole thing (20 minutes), with the volume on high (something I've learned to fix with the click of two buttons)
4AM - eye drops and vitals again. What, you don't want to open your eyes, Ruby? I'll talk in a louder voice and turn the lights up brighter. Then when it's over and I clap and say "good job", resulting in you sitting up, I'll say, "Well, I guess you're up for good now!" (To which I reply, "No, we're not going to do that. Please turn out the lights.") Once they leave, Ruby stands up and tosses and turn and talks in her crib for 45 minutes now because she's totally awake.
6AM - chemo finish. More paper gown music for 15 minutes.
7AM - shift change - lights on and let's go
*These are the same eye drops Ruby had all through last week, including at home with Lehr and I. Most of our nurses, and Lehr and I are able to get the drops in quickly with a little cry, but then Ruby goes right back to sleep.