Wednesday, September 09, 2015

More of the Same

Isaiah 40:28  Do you not know? Have you not heard? The LORD is the everlasting God, the Creator of the ends of the earth. He will not grow tired or weary, and his understanding no one can fathom.

Today was much of the same for Ruby, starting with a very decent breakfast which she mostly fed herself (she is enjoying holding the spoon out for me too). We took our oral meds and then got unhooked from the IV. Ruby and I went to the fountain, to the playroom, to the other playroom, and to the fishtank all before rounds. Ruby's team had nothing new for us: Ruby's numbers are still looking great, as are all of her vitals (checked every 4 hours, around the clock). She is still ok'ed to be on fluids only at night, and she is still not showing any need for Zofran. That, combined with her current energy levels, may mean she makes it through this first round of chemo without any vomiting or fatigue....we'll take it!

Around lunchtime, Grandma Cathie and Grandpa Jim came for a visit. Ruby had a great time running them all around the hospital. Then Grandma stayed while Ruby napped so that Lehr and I could meet with the social worker (mainly to work on Katie Beckett) and then attend a new diagnosis orientation/training with the nurse manager. So much so much.

Lehr requested to stay with the girl, so I came home to have dinner with the big kids. It was so good to sit next to them for a relaxed meal around our table at home! It's hard not seeing them every afternoon and knowing what is going on in their classes and at school. Eli has a presentation tomorrow that I knew was coming up, but had fallen off of my radar. This boy has prepared well though and is so impressing me with his maturity in the area of school work. Maddux had her first Art Club meeting today and was excited to be back with her art teacher for the extra time.

Tonight I thank God for all of the people who are still tirelessly praying for and caring for our family. Support notes, cards, gifts, emails are still pouring in and we are so very humbled by it all. Thank you is simply not enough.

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