I talk about the weight of Down syndrome in many ways, but that word can be easily misconstrued. Sometimes weight goes unnoticed. Sometimes it's just the extra stuff in your pockets that you don't notice carrying around. A long time ago I vowed to make my posts as honest as possible so that readers struggling would feel the comfort in company that I have felt from other honest blogs. I know that sometimes comes across like it's lots of complaints about all that comes with Ruby's diagnoses.
So I need to set the record straight; even when I feel like I'm so far behind on all of the therapy stuff I should be doing in addition to what we do, and all of the cognitive stuff I'm missing, and all of the skills I'm forgetting to work on daily, I don't necessarily wish away Down syndrome.