Serenity Now

It has been a L-O-N-G five days...Eli is not adjusting well to the shoes/bar at all. The first day wasn't too bad because he didn't seem to realize that he could move his legs at all. Although that frustrated him, he at least kept the shoes on. Now he moves his legs back and forth and his feet slip out of the shoes. My hands are constantly pulling laces and straps on the shoes tighter, and we have tried every pair of socks in Eli's sock drawer to find a good match. So far I have not found any rhyme or reason as to when the shoes will stay on or come off; thin socks, thick socks, two pair, one pair, morning, night: it's very random. Unfortunately for me, Eli's sleeping through the night has stopped. Last night was the best night I've had since the bar, and it was still a far cry from the 7-8 continuous hours we were getting. The first three nights Eli was up every 30 minutes (no lie)...needless to say, I'm typing in my sleep... I will be going back to the orthotist tomorrow to try to get smaller shoes; we think the shoes are too big for Eli and that's why he's slipping out so easily.

On a positive note, Eli loves his bathtime. He had his first one Thursday night; he didn't appear to be afraid at all, but yet he wasn't totally into it. However, last night he started waving his arms around in an effort to splash. Of course he gets a scared look on his face when he makes contact with the water and sends it flying, but it's great fun all the same. That fun ends as soon as the bath is over and I have to torture him by putting the shoes back on. I'll say it again: "Eli's Therapy Fund"...we accept paypal.